Thursday, April 17, 2014

Brett's Battle...

So for a few months I haven't had much interest with be honest, I haven't had much desire to do anything.  I originally started blogging because of my graduate classes...shortly after I discovered that I really enjoyed it and that I was able to meet some pretty amazing "friends" through blogging!

Before I start...I have to be honest, I've debated sharing this story with others.  My husband and I have prayed about it and prayed that it wasn't true.  I now feel that I am at a point where I can share this story.  I have accepted that it's happening and have decided to use this as an outlet. 

Usually, when I'm down or not wanting to do something I use the motto: Suck it up, Buttercup!

But my sweet, sweet angel has been having his own battles.  In March, we noticed our little angel's hair had "thinned" slightly.  So we took his little angel heart to the pediatrician...
 MARCH 2014
 The pediatrician did some lab work and sent us to a regular dermatologist. Nothing! They said his hair would stop falling out because it was at the end of the cycle. 
At the beginning of April his hair still hadn't stopped falling out! We were dumbfounded at this point and returned to the doctor. We told them other strange behaviors we notice...excessive thirst, EXTREME hair loss, constant complaining that he was hot, excessive irritability, easily tired...still they said he's fine!
 APRIL 2014
Mid April we went to a pediatric dermatologist...who is a saint in our eyes!  She immediately said this was NOT normal! She immediately told us that someone his age shouldn't not be having these symptoms and that these were signs of an autoimmune disease...she documented his hair loss and all the other symptoms.  Took photos and then sent us to get his head shaved (what little there was left) that she could document growth and changes in his hair growth cycle.  She was so sincere and honest...even when what she had to tell us wasn't the best of news to deliver.  We are now working with a pediatric dermatologist and a pediatric endocrinologist...hopefully soon we will have answers.  Until then all we can do is pray!  We are so blessed to have this little man in our lives! 

Thank you to all of you who have continued to follow my lil' blog and to those of you who have joined while I've been on my hiatus.  I am so grateful for all of you!  Hopefully, now that we are working with such amazing specialists we will have answers and I can continue to blog!  

Lots of Love!


Karyn said...

Sending prayers and positive thoughts your way!

Brandy Kowis said...

Thank you so much!

Cindy said...

What an awesome Mom you are to keep looking for answers. Sending prayers and hugs.

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